Lit up like a Lyme Green Christmas Tree

Image from Thinkstock

Image from Thinkstock

“You’ve gotta dance like there’s nobody watching,
Love like you’ll never be hurt,
Sing like there’s nobody listening,
And live like it’s heaven on earth.”
~ William W. Purkey

 

Well, you know by now that when I’m quiet there’s a good reason.

This time?

My doctor recommended a new combination of Lyme drugs.

Result?

A night of small seizures and a misbehaving brain.

The drugs are well prescribed, but the dose was too high and too many lyme bacteria and their associated friends died too fast, releasing toxins into my brain, after which I did that herx-induced shaky-limbed, sweat-soaked seizure dance all night.

I also woke with my voice totally gone.

Two days of sleep, no meds and lots of binding agents to remove all those toxins and I’m almost back to normal.

Normal for me, anyway. Normal right now is: my hands and feet are burning and yet strangely numb, there is a pain behind my ear that won’t shift, my vision is blurred in my left eye, I get intermittent stabbing pain in random parts of my body, feelings like electrical shocks get me up in the middle of the night, and after I eventually sleep I wake soaked in sweat. Don’t let it get you down though. I don’t. This is nothing compared to some of the Lyme-induced misery I’ve suffered.

It’s actually okay for me. I can deal with most of these problems, and it’s far better than where I was a year ago. Two years ago. Back then I was just this side of dead. My improvement since then has been legion. I mostly have a wide smile on my face. Because? Progress!

It humbles me, the power of these tiny critters who have wrought so much damage in my body. I no longer under-estimate them or think that simply taking drugs will be an easy fix.

While at the doctor’s on Monday I also got my latest bloods back. After two years of targeted high-dose antibiotics, herbs and essential oils I have the best blood and hormone levels and organ function I’ve enjoyed in decades. The upswing in my body is amazing. And I can feel it!!!

I can honestly say I’m winning now. Battle weary as I may be.

Best Christmas present ever! 🙂

But oh how sad that I have had to fight for thirty years to get a diagnosis, that lyme disease is still not acknowledged by most of the Australian medical community, and that effective treatment is something I continue to fight for rather than a right, as it is for so many other diseases and conditions.

If I must live in the Lyme Light, then at least let me help others to know that there is hope, that there can be healing, and that things will change. I will keep pushing for that change. Hang in there, Lymies!

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For more information on Lyme disease go to: 

Lyme Disease Association of Australia

Karl McManus Foundation Australia

Lyme Disease Association, Inc United States

The Canadian Lyme Disease Foundation

Tribute to Eye Patches

“There was a single blue line of crayon drawn across every wall in the house. What does it mean? I asked. A pirate needs the sight of the sea, he said and then he pulled his eye patch down and turned and sailed away.” 
~ Brian Andreas, Story People: Selected Stories & Drawings of Brian Andreas

Eye Patches. Not just for Pirates!

My evolving sense of eyeball style over the past six months, brought to you courtesy of Lyme Disease

Phase 1 – It’s agony, it’s temporary, we’ll make do.

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Phase 2: I’ll get one of these surgical eye patch numbers from the chemist, and just not go out much.

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Phase 3: Oh hell, I’ll still go out, but I’ll discretely cover it up, and no-one will know that I’m sick and afflicted, even when my friend has to cut my food up for me in cafes and act as a human guide dog. (Thanks, Carly-Jay Metcalfe xx) Reminds self it is a temporary thing. Tries to be cool with it. (Failing…)

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Phase 4: Realisation: I am what I am. Arrrrgh – embrace Inner Pirate and decide to be happy anyway. Find awesome eye patch at Abracadabra, a funky store in my hometown of Bangalow. This eye patch thing could be part of my fashion statement for a while yet. And I’m good with that. In fact I’m out and proud!

2013-08-28 17.53.30And hey, at least I got my smile back!

PS: Kill all the things! 🙂

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