Isn’t it funny how you can be totally fine, and also not, all at the same time…
Living In A Body – The Things No-One Talks About
We all have bodies. We all have souls. And all of us hurt sometimes.
Sometimes you just need a moment
If you feel lost, disappointed, hesitant, or weak, return to yourself, to who you are, here and now and when you get there, you will discover yourself, like a lotus flower in full bloom, even in a muddy pond, beautiful and strong. — Masaru Emoto Hey, Lovelies. I needed a moment yesterday. I felt […]
Milestones
My path has not been determined. I shall have more experiences and pass many more milestones. ~ Agnetha Faltskog Hey, Lovelies. It’s been a pretty crappy 14 months healthwise, between late stage Lyme, a misbehaving heart, an intractable UTI superbug and a myxedema crisis – but I am delighted to say that I am […]
Not Fighting It
Fighting anything takes energy, so I’ve decided that’s not a great use of what little I have…
The Slow Climb Back
I think that little by little I’ll be able to solve my problems and survive. ~ Frida Kahlo Hey, Lovelies. I have missed you. Also, I have missed myself. These past two weeks have been hard. (Don’t know what happened? Go here.) It has taken time to get my new medication right, and we’re […]
Answering your questions about my wellbeing
Am I okay? Thanks for asking. Here’s my answer…
Dear COVID Long Haulers – Don’t Give Up
Sometimes even to live is an act of courage. Lucius Annaeus Seneca Dear COVID Long Haulers, Welcome to my club. I’m so sorry you acquired membership to this motley band of chronic illness warriors, but you’re here now, so as newbies I’d like to show you around, and help you settle in. 1. Let’s talk […]
Don’t ever give up on change
The secret of change is to focus all of your energy not on fighting the old, but on building the new Socrates Hey, Lovelies! I’m back in the city after my whirlwind trip away. I am delighted to inform you that I drove safely to my destination, had a relaxing time with family, and then […]
What Do Russian Roulette And COVID have in common?
It is easy to be wise after the event. Arthur Conan Doyle Hey, Lovelies. I know. I’m usually Love and Light and Optimism. But you also know, above all, I’m going to be real, I’m going to talk straight with you. I’m going to do that now. Because, you see, I’m worried that you are […]
How To Live With Pain…
“I DON’T CARE!” Harry yelled at them, snatching up a lunascope and throwing it into the fireplace. “I’VE HAD ENOUGH, I’VE SEEN ENOUGH, I WANT OUT, I WANT IT TO END, I DON’T CARE ANYMORE!”“You do care,” said Dumbledore. He had not flinched or made a single move to stop Harry demolishing his office. His […]
Dear Immuno-Compromised People, A Message To You In These Unsettling Times
“Precaution is better than a cure.” Edward Coke Hey, Lovelies.Like myself, I know that many readers of my blog, and within our community, are immuno-compromised. Maybe you have an illness like Chronic Fatigue Syndrome, Lyme, Hashimoto’s, Arthritis, Epstein Barr, Asthma or Diabetes. Maybe you have a genetic issue, like cystic fibrosis. Maybe you’re older or […]
I’m Not Ashamed
When I was first diagnosed with neurological incontinence (which comes and goes in me – I last had an attack a few years ago!) I looked everywhere for information and found almost none. It’s something no-one talks about.
My Sweet Poison
“Faith is walking face-first and full-speed into the dark. If we truly knew all the answers in advance as to the meaning of life and the nature of God and the destiny of our souls, our belief would not be a leap of faith and it would not be a courageous act of humanity; it […]
Love Letter To My Left Eye
“Yet it is in this loneliness that the deepest activities begin. It is here that you discover act without motion, labor that is profound repose, vision in obscurity, and, beyond all desire, a fulfillment whose limits extend to infinity.” ~ Thomas Merton One of the more insidious aspects of stealth pathogens like Lyme and its […]
On illness and being unreliable…
“I’m a very loyal and unreliable friend.” ~ Bono One of the issues you need to deal with when you or a family member lives with chronic illness is your unreliability factor. When I speak of chronic illness, I am talking about any condition that lasts for more than a few weeks, that doesn’t conform […]
Howling at the Moon
Those are the same stars, and that is the same moon, that look down upon your brothers and sisters, and which they see as they look up to them, though they are ever so far away from us, and each other. ~ Sojourner Truth It’s 2 o’clock in the morning and I’m wide awake; fretful […]
Diagnosis – Lyme Disease
‘All delays are dangerous in war.’ ~ John Dryden There’s a war going on in my body. In fact it’s been going on for a quarter of a century. First there came the enemy invasion. There was no loud and obvious display of force. Instead it was an invasion by stealth. A mass of tiny […]