Dear Immuno-Compromised People, A Message To You In These Unsettling Times

“Precaution is better than a cure.” Edward Coke Hey, Lovelies.Like myself, I know that many readers of my blog, and within our community, are immuno-compromised. Maybe you have an illness like Chronic Fatigue Syndrome, Lyme, Hashimoto’s, Arthritis, Epstein Barr, Asthma or Diabetes. Maybe you have a genetic issue, like cystic fibrosis. Maybe you’re older or […]

I’m in self-isolation, and here’s why

“Boundaries are, in simple terms, the recognition of personal space.” Asa Don Brown Lovelies, I’ve just closed down the perimeters of my life. I’m in lock-down. Self-isolated, here at my farm. I intend to stay here, isolated, except for essential outings, for some months. Perhaps even all year. And that’s okay. I have internet and […]

I’m Not Ashamed

When I was first diagnosed with neurological incontinence (which comes and goes in me – I last had an attack a few years ago!) I looked everywhere for information and found almost none. It’s something no-one talks about.

A Week Of Wonders

“Well, I always know what I want. And when you know what you want–you go toward it. Sometimes you go very fast, and sometimes only an inch a year. Perhaps you feel happier when you go fast. I don’t know. I’ve forgotten the difference long ago, because it really doesn’t matter, so long as you […]

An ordinary night of magic!

“The purpose of life, after all, is to live it, to taste experience to the utmost, to reach out eagerly and without fear for newer and richer experience.” ~ Eleanor Roosevelt We’re in the city right now, and last night something quite wonderful happened. Our neighbour joined Ben and I and we walked a few blocks down […]

Being Okay With Where You Are

“Life is a series of natural and spontaneous changes. Don’t resist them; that only creates sorrow. Let reality be reality. Let things flow naturally forward in whatever way they like.”  ~ Lao Tzu I’m still recovering from the flu, and gee, it’s taking muuuuuuch longer than I would have liked. On top of that I managed […]

Keeping It Real For You

“A good selfie is when you successfully capture the feeling of that very moment!”  ~ Anamika Mishra   Yesterday I ventured out into the world for the first time in weeks. This flu has really laid me low, and I’m still far from well but yesterday Ben, Cafe Dog and I went out to check the […]

My Latest Obscenities…

“Whenever you speak the truth, someone will be offended.”  ~ Laurence Overmire Yesterday I posted about having the flu (no fun!) and with that post I included pictures of myself showing me as I am right now – sick with the flu! Thanks to everyone who sent me messages of love, care and support. I’m so […]

Me, Flu and You!

  “There are in nature neither rewards nor punishments — there are consequences.”  ~ Robert G. Ingersoll You might have noticed I’ve dropped off the face of the Earth these past few weeks. There’s a reason for that. I’ve just come face-to-face with a very nasty strain of influenza. For most people flu is a mild […]

Chronic Illness? This is a Spiritual Retreat for you!

“The lotus is the most beautiful flower, whose petals open one by one. But it will only grow in the mud. In order to grow and gain wisdom, first you must have the mud — the obstacles of life and its suffering. … The mud speaks of the common ground that humans share, no matter […]

A Very Quiet Anniversary

“Let there be spaces in your togetherness, And let the winds of the heavens dance between you. Love one another but make not a bond of love: Let it rather be a moving sea between the shores of your souls. Fill each other’s cup but drink not from one cup. Give one another of your […]

Song of the Sisterhood

“A sister is a gift to the heart, a friend to the spirit, a golden thread to the meaning of life.” ~ Isadora James     These past few days have been hard. It’s been one thing after another. Then there’s the pain. It’s unrelenting. Drugs have helped take the edge off but it’s ground me […]

Apprehension

“You should have seen this coming,’ they said. I did see it coming. I saw it coming the way you see a train coming when you’re tied to the tracks.” ~ Margaret Andrews   I’ve been awake since I don’t know when. No, that’s not true. 2.36am. I lay awake in the dark for a […]

This Dawning Day

“Veil after veil of thin dusky gauze is lifted, and by degrees the forms and colours of things are restored to them, and we watch the dawn remaking the world in its antique pattern.” ~ Oscar Wilde   I woke earlier than usual today. 3am. The night air was cold, the comforter pulled right up […]

Where’s Your Focus?

“Very occasionally, if you pay really close attention, life doesn’t suck.” ~ Joss Whedon On Friday I posted about a beautiful ordinary day, and how much I had enjoyed such simple things as a trip to the farmers’ markets, clean sheets on the line, sunshine and crisp ripe apples. After that post I received two emails, extracts of […]

View From My Windows

“Set wide the window. Let me drink the day.”  ~ Edith Wharton, Artemis to Actaeon and Other Verses   My windows are both real and figurative. The picture above is the view from my bedroom window. This view changes hour by hour, and affords me much pleasure. In the early mornings the sky is grey, before becoming […]

Unexpected Blessings

“Women are never so strong as after their defeat.”  ~ Alexandre Dumas I admit it. Yesterday, for a moment (or perhaps a little longer) I wondered how I would pick myself up and keep going. I cried. A lot. My doctor wants me to continue with another full course of the horror drugs which had me […]

Lyme and the Witches’ Mark

“The fables of Witchcraft have taken so fast hold and deepe root in the heart of man, that fewe or none can (nowadaies) with patience indure the hand and correction of God. For if any adversitie, greefe, sicknesse, losse of children, corne, cattell, or libertie happen unto them; by & by they exclaime uppon witches. […]

Chronically ill and Happy!

“The individual who says it is not possible should move out of the way of those doing it.” ~ Tricia Cunningham   I’m not happy because I have a chronic illness – I’m happy because I still love my life! It’s possible, and in fact I think it’s necessary, to find happiness when life has dealt […]

The Patient should be Sleeping

“It is an awful thing to be betrayed by your body. And it’s lonely, because you feel you can’t talk about it. You feel it’s something between you and the body. You feel it’s a battle you will never win . . . and yet you fight it day after day, and it wears you […]

Lyme Schlyme!

“I keep sailing on in this middle passage. I am sailing into the wind and the dark. But I am doing my best to keep my boat steady and my sails full.”  ~ Arthur Ashe The past few days have not been among my best. Physically I’ve struggled. It started earlier this week, of course, […]

On illness and being unreliable…

“I’m a very loyal and unreliable friend.” ~ Bono One of the issues you need to deal with when you or a family member lives with chronic illness is your unreliability factor. When I speak of chronic illness, I am talking about any condition that lasts for more than a few weeks, that doesn’t conform […]

How to take a Blessings Bath

“The unthankful heart discovers no mercies; but the thankful heart will find, in every hour, some heavenly blessings.”  ~ Henry Ward Beecher Today’s post is all about nurture. I want to share with you a process that I call a Blessings Bath.  I usually take a Blessings Bath when I am feeling anything but blessed; when […]

Howling at the Moon

 Those are the same stars, and that is the same moon, that look down upon your brothers and sisters, and which they see as they look up to them, though they are ever so far away from us, and each other. ~ Sojourner Truth It’s 2 o’clock in the morning and I’m wide awake; fretful […]

Living in the Lyme Light…

“Although the world is full of suffering, it is also full of the overcoming of it.” ~ Helen Keller (June, 1880 – June, 1968) I’d love to be blogging something wonderful for you, and indeed that was my intention – I’ve got so much good stuff planned – but the past few days I’ve been […]

Loving myself lopsided…

“The play is done – the curtain drops, Slow falling to the prompter’s bell; A moment yet the actor stops, And looks around, to say farewell. It is an irksome word and task; And, when he’s laughed, and had his say, He shows, as he removes his mask, A face that’s anything but gay.” ~ […]

Vomiting in Public Places OR The Controversial ‘Vomit Post’

“Girls blush, sometimes, because they are alive, half wishing they were dead to save the shame. The sudden blush devours them, neck and brow; They have drawn too near the fire of life, like gnats, and flare up bodily, wings and all. What then? Who’s sorry for a gnat or girl?” ~ Elizabeth Barrett Browning […]

Fear of Crossing Roads

“No one has traveled the road of success without ever crossing the street of failures.” ~ Unknown I have an embarrassing confession. I’m not good at crossing roads by myself. It’s a legacy of the neurological damage caused by chronic Lyme Disease and various co-infections. Like most things it’s worse when I’m tired or unwell. My reaction […]

Diagnosis – Lyme Disease

‘All delays are dangerous in war.’ ~ John Dryden There’s a war going on in my body.  In fact it’s been going on for a quarter of a century.  First there came the enemy invasion. There was no loud and obvious display of force. Instead it was an invasion by stealth. A mass of tiny […]

Heal-All Chicken Soup Recipe

“If you’re blue, have the flu, or can’t seem to … then Chicken Soup is for you.” ~ Anon Looking for a quick meal to throw together? This is not it!  My Heal-All Chicken Soup recipe takes time – 8 to 12 hours minimum. I make this soup as medicine in a bowl… Home-made chicken […]

Not knowing…

“Waiting is painful. Forgetting is painful. But not knowing which to do is the worse kind of suffering.”~ Paulo Coelho Is it better to know or not know? It’s a question I’ve asked myself so many times that I can no longer trust the answer. I am dancing a slow dance with something that is […]

Sometimes Your Only Job is to Ask for Help

Problems are not the problem; coping is the problem. ~ Virginia Satir I have a friend going through a tough time right now. For her everything seems to be going wrong. There are substance abuse issues, and she thought by cleaning up and getting that out of the picture, somehow everything would be fixed.  But […]

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